Interested researchers and collaborators are encouraged to contact
- Erik Lontok, PhD, at 914-303-6323 ext 3 or email at pi@barthsyndromeregistry.org. Erik Lontok is the Director of Research for the Barth Syndrome Foundation.
- Melissa Huang via email at coordinator@barthsyndromeregistry.org. Melissa Huang is the Clinical Research Coordinator of the Barth Syndrome Foundation.